ALAN FANECA
STEPS TOWARD ZERO (STZ) Champion
Former professional football player and 2021 hall of fame inductee
KENZIE O’CONNELL
STEPS TOWARD ZERO (STZ) Champion
Professional golfer and Epilepsy Foundation of Colorado ambassador
NATALIE BEAVERS
STEPS TOWARD ZERO (STZ) Champion
Founder/CEO Angels of Epilepsy and winner of the 2018 WEGO lifetime achievement award
JARED MUSCAT
STEPS TOWARD ZERO (STZ) Champion
Avid surfer and advocate for Epilepsy Foundation Greater Los Angeles area
When it comes to epilepsy
THE GOAL IS ZERO SEIZURES
Let’s unite under one common idea: taking STEPS TOWARD ZERO seizures.
STEPS TOWARD ZERO is a movement that’s designed to educate, inspire, and activate the epilepsy community to reimagine their goals with the help of their doctors—and that starts with stronger conversations.
Know you’re not alone in your pursuit of zero seizures. There's a whole community that has come together to support your goals.
HEAR STORIES FROM OUR STZ CHAMPIONS
Did you know?
1 in 26 people in the United States will develop epilepsy at some point in their lifetime, and more than half of people with epilepsy continue to have seizures despite being currently treated.
WE’RE LISTENING TO THE
EPILEPSY COMMUNITY
The Seize the Truth About Epilepsy Perceptions (STEP) Survey was created to understand the current state of epilepsy in the United States. The responses came from 400 adults with epilepsy, 201 caregivers, and 258 doctors.
HERE IS SOME OF WHAT WAS FOUND:
“It’s up to us...to encourage our patients to be open and honest with us about any seizure they may have...this open conversation will allow a partnership between the [doctor] and the patient to give the patient the best quality of care.”
- Danielle Becker, MD, MS
Neurologist
WHEN PEOPLE HAVE RECURRENT SEIZURES, THEY ARE:
more likely to have problems finding or keeping a job
more likely to have problems related to education
more likely to feel
like they don’t fit in
more likely to have problems finding or keeping a job
more likely to have problems related to education
more likely to feel like they don’t fit in
Based on data that compared patients who had ≥1 seizure in the past 5 years with those who experienced no seizures in the past 5 years.
How do we hit
our goals?
We can start by coming together as a community and understanding that everyone’s journey with epilepsy is different.
We should have thoughtful conversations with our doctors about all of our goals—in treatment and in life.
We can rally around the idea that getting everyone with epilepsy closer to zero seizures is a community goal.
“It’s always important to try to keep an open conversation with the patient about the frequency of seizures so that the [doctor] and the patient can work together as a team to really reach [the] goal of no seizures.”
- Michael Privitera, MD
Neurologist
TAKE THE FIRST STEPS IN THE RIGHT DIRECTION
Understand what type of epilepsy you have and how it affects you
Track your seizures
Have more meaningful conversations with your doctor
Know Your History and Rethink Your Goals
With the right S.T.E.P.S., you can have stronger conversations with your doctor and work together to reach your seizure treatment goals.
LEARN MORE
“Ask questions and be open, because as much as your doctors know, they can’t read your mind.”
- Kenzie O'Connell
STZ Champion
Professional Golfer
STRONG CONVERSATIONS for STRONGER OUTCOMES
To watch more S.T.E.P.S. videos, and to learn how to use the discussion guide, STEP toward our Video Library.
S.T.E.P.S. video library
Epilepsy Treatments
Your epilepsy is unique to you, and seizure treatments are going to work differently from person to person. Always be open and honest with your doctor about what’s working and what’s not.
LEARN MORE
STEPS IN MOTION
Our Charity Miles initiative turns your physical activity into a donation to the Epilepsy Foundation. We can’t think of a better way to start putting your steps in motion. Can you?
LEARN MORE ABOUT HOW TO GET INVOLVED
Using the camera on your mobile device, scan this QR code to download the Charity Miles app.
GET INSPIRED. HEAR FROM OUR
STEPS Toward
Zero Champions
"Keep taking steps forward, especially when the end result may lead to zero."
– Alan Faneca @afan66
“Never give up on what you deserve when it comes to epilepsy treatment and living your life.”
– Natalie Beavers @angels_of_epilepsy
“Your epilepsy is personal to you, but it feels good to know there’s a whole community rallying behind you, wanting the same thing.”
– Kenzie O'Connell @kenzie.oconnell
"I changed the way I was talking with my doctor about my epilepsy and it’s made all the difference."
– Jared Muscat @jaredamuscatChampions are real patients with epilepsy who are compensated for their participation.
Champions are real patients with epilepsy who are compensated for their participation.
At SK life science, we are driven by the needs of healthcare providers, patients, caregivers and the CNS community—nothing else.
See what SK life science is up to